It's with a reserved and cautious optimism that I share this information with everyone... Mark has been offered a chance to participate in the DTIL3 study after all. Unbelievably, his blood was retested and it came back within the acceptable range to move ahead in the study. We are in complete shock and almost afraid to believe it.
We have been sitting on the news for a while because we don't want to drag everyone along on the rollercoaster with us, but we have a bit of hope to hold on to now and that is what is important. It is all very preliminary, there all lots of tests this week still, but we at least have another chance and that is what we are focusing on.
The last two weeks or so we have been unreal - almost like we're in a movie. Watching people go about their day, listening to people shush their kids in waiting rooms, watching them bustle about on Broadway while they catch the B-Line. All of it while Mark and I sit in traffic or wait for another doctors appointment for what? It all seems so wasted. Everyone's time is wasted rushing somewhere or rushing their kids to grow up. It has really changed the way we look at life and it has changed us forever.
It's impossible not to think about our future and how this disease is stealing it away from us. The last two weeks have changed us and in a wierd way, made us even more committed to fighting this disease. For now we have a slim chance and we're taking it. No matter how much disappointment may or may not be around the corner, we'll take today - with open arms.
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Mark & Leslie,
ReplyDeleteThank you for sharing your news with all of us. I can't begin to imagine how you both are feeling at this time. This is good news, last time we spoke you were waiting for the second round of test results, and now Mark results have showed improvement and he has been accepted for the trial. Always remember that both your families and friends are on this rollercoaster with you and Mark no matter what the prognosis.
I think of you both night and day, and wish I was closer so that I could give you a great big hug. Take it one day at a time, and remember love moves Mountains. Love always, Jul
Hi Mark and Leslie,
ReplyDeleteWe are still checking the blog and really appreciate the updates. I just called my mom and dad to share the news. We will inform Christine and Steve to read it too. We think about you all the time and its good to hear that Mark has this opportunity for treatment.
Take care,
Kevin and Julie
Sending you love, support and hope during this time. Miracles happen evryday we all just have to believe. Live Love and Laugh.
ReplyDeleteLeslie,
ReplyDeleteI am sorry your loss, you appear to be a strong women with much support and I know you will continue on with Mark in your heart. Be hopeful of the future.