It is even harder to compose this blog than the last two but I am going to try...
We are back at T15 and Mark is not well. We have been struggling with managing his pain and more complications are arising. Unfortunately, this is typical of Leukemia and we have come to a roadblock with active treatment of the disease.
Mark's antibodies were too high to participate in the DTIL3 study and we are dealing with the reality of what this means for us. The doctors have retested Mark in the hopes that his antibodies may have dropped over the last 10 days but it is a very remote possibility.
Mark and I are now faced with the reality that there will be no chance for recovery from this terrible disease. We are in shock, devastated, mad and overwhelmingly sad. We knew that this was a real possibility but never actually thought it would happen to us. For those of you who have spoken to us, we know there is no perfect response, there is nothing to say that can fix this. It is completely unfair and we are trying our best to accept and move on. It felt impossible yesterday and the day before but we have to try. Today is a new day and we are determined to make the most of our time left together. It's the only thing to do.
The Millennial CAPTCHA
2 days ago