Sunday, October 22, 2006

Still Waiting...

Today is Sunday and it's an amazing fall day again in Langley. The sun is shining and I have the sliders open while a warm crisp breeze blows through the house.

Kids are sleeping, actually Audrey is singing to herself on her bed while Noah snores. Happy sounds in what feels like a bit of a dream. If only adults could just enjoy the moment the way Audrey seems to. She knows Mark is sick but is still able to go about her day just like always, singing, playing barbies and reading books. What I would give for that unspoiled happiness that we see on her face even though it feels at times like the world is crashing down.

It's the waiting that does it. We were pretty confident that we would know by Thursday if Mark could participate in the trial but as luck would have it, they didn't send his sample out untill Monday so it adds three more days to the wait.

So the trial...it's very new, a phase one trial. Only 25 people world wide have tried the drug for treating Leukemia and only 7 people here in Canada (all of them at VGH). This would make Mark lucky number 8. As scary as it sounds, all drugs need to go through this process and somebody has to try them. We are eagre to get on with the treatments because Mark is running into complications now with his numbers being so low. Fevers, infections, pain ect... it's been a rough week but we are coping with "Nanny Chris" and now Mark's friend Warren is here. It's great having the help and it breaks up the routine a bit to be able to visit with old friends.

Of course I will blog any news as soon as we get it so keep checking in on the blog and email when you can.

1 comment:

  1. Leslie, I met you in March in that long elevator ride down from T15. When I could hardly utter a few words, you somehow gave me strength with a warm smile and a little chat. Thank you for that--It has stayed with me over this challenging year. Please know that our prayers are now for you and we are all hoping sooooo hard for you and Mark and your little angels and those amazing doctors.
    Jennifer

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